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Old 10-24-2005, 09:53 PM   #1 (permalink)
TKDLady
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I have a friend whose son is brain damaged from a near drowning this summer. He asked me to help spread his story in the hopes that other parents won't have to go through what he is going through. I just want to help him and if this helps him than so be it. Maybe it is helping me to cope with our strained friendship due to this tragedy.


Dave's Story:

On June 7, 2005, Dave’s life was changed forever. His only child, his 14 year old son, Michael, went to the beach, got drunk, went into the Gulf of Mexico, passed out in the water and drown. He was clinically dead for 5 to 10. Vacationers staying in a hotel not far from where Michael was saw him and called 911. A county sheriff’s deputy arrived on the scene, pulled Michael out of the water and resuscitated him. Because of the lack of oxygen to Michael's brain he suffered what is called an Anoxic Brain Injury. Michael was then flown by Life Flight to Sacred Heart Hospital and placed on life support. Michael wasn’t alone at the beach that day. He was with a couple of 16 year old boys, two 19 year old girls, and one 20 year old girl. One of the 16 year olds provided vodka and the girls provided beer. None of these kids tried to stop a 14 year old from drinking and none of them helped him when he passed out in the water. Some of the kids involved went to the hospital that night and when asked if alcohol was involved they responded “no”. After a blood alcohol test was performed it was discovered that Michael had a blood alcohol level of 0.32. This was the beginning of their lies to the authorities. More on this later.

Dave spent just about every day and night for the next few weeks with Michael at the hospital. The first day Michael was there, Dave could not enter his son’s room because of all the tubes and monitors to which Michael was connected. When he was able to enter his son’s room the real pain and anger over what had happened began to take hold. Dave started learning just what brain damage can do to a body and suffered the pain and anguish of watching his son go through what laymen call “Storming” or more technically, Dysautonomia. Typical symptoms are: elevated temperature, profuse sweating, increase in heart rate, increase in respiratory rate and labored breathing, agitation, increased muscle stiffness (spasticity), and large pupils. These storms come on without warning and can last for hours. Imagine watching your child thrash around with a heart rate of around 190, soaking his sheets in a matter of minutes and not be able to do anything but watch and hope the drugs used to calm him down take affect soon. This happened daily, sometimes multiple times per day for the first 3 months. Along with this, Michael was on morphine at the beginning of his stay. He became addicted and the hospital had to treat the addiction as well as the brain injury. Another terrible thing for a parent to go through. Michael eventually became medically stable enough for him to begin some real rehabilitation. Dave and Sacred Heart Hospital arranged for Michael to go to Children’s Hospital of Atlanta (CHOA). Atlanta is a six hour drive but Dave did it every other week while Michael was there. He and his ex-wife swapped staying with Michael and learning how to care for someone in his condition. They had to learn how to clean his feeding tube, known as a g-tube. They learned how to use a Hoyer lift to get Michael from his bed to his wheelchair and back to his bed. They learned how to take care of someone who can’t swallow, can’t eat, can’t talk, can’t walk, can’t do anything for himself. What they didn’t get and were promised by all the flyers and brochures for the place is the 6 to 8 hours of rehabilitation for Michael. They were lucky to get 2 hours a day. The doctors at CHOA then decided that Michael needed to have the tendons at the back of his legs cut since his muscles were atrophying and his legs were starting to permanently bend. This, of course, delayed his rehab by about a week and a half because they couldn’t do the usual things with Michael while he was healing from surgery. Also during Michael’s stay at CHOA the doctors decided to insert a Baclofen pump into is abdomen. Baclofen is used to combat the muscle stiffness and spasticity. It is also a way to help control his storming. Michael was sent home at the beginning of September. He is unaware of his surroundings and his body is deteriorating daily since he is bedridden. Dave mentioned once that he sometimes listens to the voicemail greeting on his son’s cell phone just to hear his voice. Michael is trying to talk and I hope and pray he does it soon. No parent should have to go through this much pain.

Dave and his ex-wife are now learning how to live with a child with special needs. Michael is going to a special school where, hopefully he will get the rehabilitation he needs. There are lots of people praying for Michael’s recovery and I am one of them. I see the pain on Dave’s face when I see him. I hear it in his voice when I talk to him. He doesn’t sleep well and probably doesn’t eat correctly either. Dave talks about all the heroes in this story, but I think he is also a hero. I admire his perseverance in the face of the injury to his son, in the legal system that is working so slowly, in the fight with the insurance company to get the help he needs, in his undying love for his son and in his fight to make this as public as possible in the hopes that it will help other parents to not have to suffer they way he and his family are suffering. Dave has a very difficult uphill battle to fight and he is slowly making it to the top. He has the help and support of all his friends, me included, to help make the climb a little easier.

If there is a moral to this story it is that all parents need to take an active part in their child’s life. Don’t be their friend, be their parent. Teach them right from wrong while they are young and discipline them when they do the wrong things and be consistent. Show them you love them by talking openly with them and finding out about their friends, where they are going and when they will be back. Find out who their friends’ parents are and get to know them. Form a calling chain so that when something is going on you can contact each other. The kids on the beach on June 7 all did the wrong thing, including Michael. He will pay for the rest of his life. The others have lied to authorities and some have been arrested and charged with contributing to the delinquency of a minor as well as giving false statements. One of the adult girls in this case, one of those on trial for contributing to the delinquency of a minor and giving false statements is also a mother. How sad for her child that her mother didn’t have the brains to stop underage boys from drinking. She actually helped get Michael in this condition. It is still a mystery as to who actually provided the alcohol since all the parties involved are minors. But since none of the minors are talking they will be the ones who pay. They have trial dates and all of Dave’s friends are praying they receive the maximum sentence possible. One of them has already been sentenced to at most 9 months in juvenile detention. It is a small victory but a victory nonetheless. Unfortunately the charges are all misdemeanors. They provided alcohol to a minor, he died for a few minutes and is now permanently injured and all they are getting is a slap on the wrist. There is something seriously wrong with our justice system. Go to www.justiceformichael.com, look at the pictures on the main page and then you decide. Is the picture on the right only worthy of a misdemeanor? I think the charges should have been felonies and the punishments should match the crime! It is time for Florida to change its underage drinking laws.

A Friend Forever,
Jeanne
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Old 10-24-2005, 10:03 PM   #2 (permalink)
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yeah that sucks.
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Old 10-24-2005, 10:18 PM   #3 (permalink)
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what a sad sad thing to happen to a young boy and a nightmare for the parents. My prayers and thoughts are with this family.
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Old 10-24-2005, 10:53 PM   #4 (permalink)
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I can't even comment.
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Old 10-25-2005, 12:57 PM   #5 (permalink)
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Thanks for checking my message. I hope you can visit Dave's web site and drop him a line of encouragement. His son has pneumonia now which I am sure is a worry for him. Thanks again.

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Old 10-25-2005, 08:50 PM   #6 (permalink)
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Heartbreaking and Heartwrenching
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Old 10-25-2005, 09:53 PM   #7 (permalink)
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It is very heart breaking. I see him every day at work and I die a little just seeing how tired and stressed he is. I want so much to help him but don't know how anything I do will help. I can't bring his son back and that is what he needs. Doing this and getting his story out is what he asked me to do so I am doing it. Thanks for reading and caring.

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Old 10-25-2005, 10:20 PM   #8 (permalink)
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it could be worse, his son could have died. At least now he is alive, it wont be easy, but it is a life.
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Old 10-25-2005, 11:08 PM   #9 (permalink)
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Yes his son is alive but every time he sees what condition he is in he re-lives the day it happened and remembers the lies and deceit of the kids that helped put him in this condition. If he had died, then he would heal faster. I am hoping and praying daily that with the therapy and schooling he is getting he will be able to talk and walk one of these days. That would be the best right now. Dave isn't living now, he is just surviving but hopefully, given time, he will be able to live again and Michael will be able to enjoy that life with his father.

Thanks for reading and responding.
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Old 10-25-2005, 11:23 PM   #10 (permalink)
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I have a special needs child who went thru rehab, speech therapy, OC, PT ect. My 3 year old was "brain dead" for several months.. but ya know what I prayed and prayed and so did many many people and now by the grace of the good lord I have a Happy, Generally healthy, smart, confident, and strong little boy. He is SLOWLY getting his speech back but he tries and gets better daily. Children are real troopers and bounce back quicker than adults.

Keep Praying and don't lose faith!! He is young and strong

As a parent I just wanted to trade my child's pain for my own. it is so upseting for a parent, but my child taught me more about survival than I could have learned in a lifetime.. Have your friend check into the Ronald McDonald house for support, Apraxia Kids has great speech support, we use alot of sign language for the language barrier.. or have your friend join here, I had to walk down that horrible road and I still am, it gets better and eaiser with time and support.. if I can help in any way let me know
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Old 10-26-2005, 12:18 AM   #11 (permalink)
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I did try to leave feedback on the site and failed :? I do have a question Why is he getting treatment in Atlanta? Florida All Childrens Hospital is one of the best in the country? Also St. Augistine "Florida School for the Blind & Deaf" also can point you in the right direction when it comes to extensive speech & Language therapy as well as Auditory.

Having been in a similar situation I had to learn that it is CRUCIAL to get 2nd 3rd sometimes 4th oppinions when it comes to the health of my child. The last thing any child needs is to get pushed thru the system, not saying he is at all, just make sure ALL RESOURCES are tapped. IS the faimly receiving SSI for this child? If not they should everything helps and Medicade will pay for all of the diffrent therapy's. Has he had a Hearing Evaluation? My child had a stroke, similar to storming and lost his hearing for 6 months. He lost his hearing due to the medication prescribed. Anyway I have the information of the BEST NEUROLIGIST in the state of florida and he takes medicade, he is in Tampa if you want the information let me know.
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Old 10-26-2005, 12:55 AM   #12 (permalink)
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Stone is right, kids are better at the survival. It is probably much harder on your friend then on his son. I am physically disabled, i know what he is going through, sort of, i was born with mine and so i never knew any different.
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Old 10-26-2005, 08:26 AM   #13 (permalink)
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Thank you for all your comments and help. Stone, I would appreciate any information you can provide me or Dave. I sent you his e-mail address so you can e-mail him directly or if you want to send me more information via a private message I will see that he gets the information. Thanks for your help.
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