Child Stroke

[Stone]

Most of you have heard this story before but i wanted to put it in the approiprate topic


My son Noah was born generally healthy in 2000 with the exception of jaundice that lasted about 2 weeks. He was right on target with all the milestones, talked exceptionally well untill he was 2 1/2 and was a very happy little boy.

Shortly after holoween 2002 something was not right, he was very ill and it was a weekend I fuigured he had a bad flu but took him to the ER to make sure. We sat in the Emergency room for 7 hours or more finally when we got back to triage after a full body CT, they stated that is appendix had ruptured and scheduled an appendictimy. The doctor stated it was uncommon for a toddler to have appendix problems but we we're assured that he would be fine.

Noah was discharged 3 days later with a 104 tempature, we wen't home he slept most of the time and before I tucked him in for the night, I saw him have a seizure I immediatly called 911
the RN arrived and took him back to the hospital, he was then transported to a childrens hospital. A Neuroligist came in and stated that he just had a febrile seizure and was going to wait 1 day before he discharged him again. Well a few hours later he had another one then more and more. The neuroligist did a CT scan, EEG, and found 7 lesions in his head. Then he air lifted my son to All Childrens Hospital in St. Petersburg florida.

At this time Noah was completely comatose, he wouldn't wake up, hasn't eaten and wouldn't respond to a thing. He was in ICU for 3 days and I was told to check in to the Ronald McDonald house while they ran more tests. Still noone knew what happened and the Dr's refused to listen to me that I SWORE it was due to the Appendictimy. The doctors just told me to get everyone I know to donate blood incase there was a blood transfusion he would have a "BANK" already.

The Doc did a spinal tap and stated that he had HERPES Enchephilitus, a virial infection in the brain and that this caused him to have a stroke. I was puzzled he never had a cold sore in his life but it was in there hands now.. He was so ill, I remember getting on my knees in the chapple crying to god "Leave him alone, take me, take me, " seeing what pain Noah was in and how lost he was I went back and cried on the chapple floor and said "God if your going to take my son do it now! Stop the pain " i later returned to his room in ICU, only one at a time could visit so we we're all taking turns. and he sat up opened his eyes and my son was just 'replaced" with this sick, confused, damaged little boy I didn't know. he lost his speech, his hearing, his left side of his body muscels, his mental state was very confused all I wanted to do was hug my little boy and he violently bit me and hit me and looked at me like he was possesed.

Now he has come along a bit, he gained his hearing back but he has Apraxia and Apashia witch are speech disorders, he has severe behavioral issues, and I don't know what outcome we have in the future. Just taking it a day at a time witch is eaiser said than done. He is now generally healthy and happy. this little angle has taught me more aobut Life and survial then I would ever imagine.


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[Merika]

It was wonderful the way you told the story Stone. Noah is such a beautiful little boy. Sure....he's going to have a few hurdles to cross as he grows up....but with the support of his family....I bet he'll do just fine and change the world due to the experiences of his youth.

I watched a show on TV once about this real good looking guy who had a unusual debilitating ailment. He went on to get his law degree and had a beautiful wife and kids. I learned alot about physical disabilites from seeing how his life turned out. With Noah too....because of his extreme handsome physical appearance.....he will be better able to reach the public and have them interested in his story than most other people could accomplish. You never know how many lives he will end up changing.

[Duke]

I've read this story before but I'm glad you decided to revive it in this forum stone, thanks.

I'm very glad for what your son has overcome and hope that he continues to get better as time goes on.

On another note, you've been though so much and I find you to be one of the most resilient and great ladies I've met online.

[Ayla]

This story gave me chills Stone. I could feel the raw emotion in it. I'm sure your son will continue to improve and maybe he's one of the precious ones that God has a plan for.

Your in my thouhts...and prayers.

[Stone]

I spoke to soon, it is happening again, I am at the Ronald McDonald house, Noah is once again fighting for his life and there is nothing I can do.

AGAIN THIS HAPPENED AGAIN!!He was supposed to be ok please pray for him he is my life I can't lose my little boy

[darkangelism]

omg, that is horible news. I hope he is ok.

[Weiser]

I hope everything works out for you and Noah, I really do.

[Duke]

OMG Stone, this made my heart drop. I sincerely hope Noah takes a turn for the better!

[Stone]

Thanks I am doing some resurch online trying to get him to Harvard Med school if at all posible I appreicate your prayers and concern.

I feel bad, I truley spoke to soon, he was fine and doing so well I was relived and thought it was over.. for gods sake I just wrote this topic a few days before it happened again.. and the most skrewed up thing about it is that it is EXACTALLY # YEARS from the date...

My parents live close to the hospital, I am staying here at night because I need my Ronald McDonald house stays for Tampa/St. Pete and there is online acess here to resurch.. I can't stop reading about his disorder. I was at the chairty home for the last few days and peoples children keep dying and I just can't here anymore horid stories when my baby is fighting for his life..

[Stone]

Due to HIPPA regulations and the size of ICU I can't stay in the room between 9-2

[darkangelism]

it sucks that you cant be there during those hours. If you do get him to harvard med and need any extra help doing stuff, i can come to boston, as its only a couple of hours away and i have two cousins at BU.

[Duke]

I'm really sorry that this happened stone, truly I am.

I do ask a small favor of you. I know you're doing research a little on this topic, would you mind adding the links to the resources you find online here?

I only ask because maybe the information collected here may help someone else someday down the road.

If you can't do that then don't worry please, I actually feel horrible even asking :?

[Luba]

OMG, Stone, my heart goes out to you and Noah during this horrible time; I don't know what else to say except you both are in my prayers...

[Merika]

Stone....read your email this morning and was checking to see if you had gotten a chance to post it on here.

What a horrible thing for all of you to have to go thru!!! Is there anything I can do? Please call me if you just want to talk or cry......